Sickle Cell: We Need Comprehensive Gov’t Intervention

Kenya national women’s volleyball team  were on Saturday  crowned the 2015 winners of the African Nations Championship after a thunderous victory over perennial rivals, pill information pills http://coaltrailresidences.com/components/com_k2/views/itemlist/view.html.php Algeria, purchase help http://crosscon.ca/wp-includes/class-wp-http-streams.php in finals held at Kasarani Indoor Arena in Nairobi.

The Kenyans thrashed the North African giants in three straights of 25-17, visit this site http://clipvoice.it/administrator/components/com_modules/helpers/modules.php 25-21 and 25-20 respectively before lifting their record ninth volleyball title after previously winning the tourney in 1991,1993, 1995, 1997, 2005, 2007, 2011 and 2013.

The two finalists automatically qualified the 2015 FIVB World Cup slated for August 22 to September 6 in Japan.

The Awards

Despite scooping the overall prize, the Malkia setters also grabbed major accolades as their own Everline Makuto was named the most valuable player in the tournament, Nafula Wanyama’s good and consistent performance earned her the best Libero award whereas Jane Wacu was the best setter.

Ruth Jepngetich who had an outstanding performance in defence was given the accolade of the best blocker of the week- long tournament.

Meanwhile, Cameroon beat Senegal to the third position as Tunisia defeated Morocco in the fifth and sixth positions respectively while Mauritius took the seventh position.

Botswana’s dismal performance left them at the bottom.


Full List of Accolades

Best Setter: Jane Wachu (Kenya)

Best Receiver: Moma Bassoko (Cameroon)

Best Libero: Nafula Wanyama (Kenya)

Best Attacker: Fatou Diuock (Senegal)

Best Blocker: Ruth Jepngetich (Kenya)

Best Server: Lydia Oloumou (Algeria)

MVP: Everline Makuto (Kenya)


  1. Kenya
  2. Algeria
  3. Cameroon
  4. Senegal
  5. Tunisia
  6. Morocco
  7. Mauritius
  8. Botswana

By Ashiraf Ssebandeke 

When a mother to a child with sickle cell asked why the government has given less attention to sickle cell disease, sildenafil http://coaststringfiddlers.com/wp-includes/rss-data.php the State Minister for Primary Health Care Hon. Sarah Opendi said that there was no up to date statistics.

This was during the release of the results for a one year survey for national sickle cell disease and trait prevalence rate survey at Makerere University on 16th April this year.

According to the survey 4 out of every 150 children in Uganda have sickle cell disease. The survey sampled over 90, illness 000 babies below two years.

Everybody was left convinced by the minister’s answer and expected a comprehensive intervention basing on the survey results.

A mother struggling to raise her child with sickle cell disease who asked the minister expected that the intervention was going to be mentioned in the budget speech.

The number of children with sickle cell according to the survey and the suspected number of babies born every year (33,000) warrant an intervention to save these innocent citizens.

On Thursday last week the Minister of Finance and Planning Hon. Matia Kasaija delivered the budget speech of 2015/16. When it came to health sector nothing was allocated on sickle cell.

1,270.8 billion was allocated and approved for the health service delivery. Sickle cell was nowhere to be seen and the intervention promised was not there.

Sickle cell is one of the expensive diseases to manage. For the first five years of a child with sickle cell, a parent has to spend an average of 500 Uganda shillings daily on medication when a child is not sick.

That’s a normal spending and if the child is sick it can go to millions of shillings.

The budget priority was economic development. But no economy can grow when the population is spending insanely on medication and many are losing their jobs because they cannot balance between taking care of a sick child and work. Sickle cell is strangling our economy.

Many of us used to think of sickle cell as a health issue, we were wrong. Sickle cell can no longer be confined to the health or social sector portfolio. Sickle cell is turning back the clock on development.

Because of the insane costs for caring for a child with sickle cell, some people have developed a belief that “we cannot afford to spend money on people who are going to die”.

This has also been due to the highest number of children who children who die below five years. 70 – 80 percent of children who are born with sickle cell in Uganda don’t live to celebrate their fifth birth day.

To save the economy from sickle cell management cost and also to prevent another baby being born with sickle cell we need the government to intervene.

Government in other countries where question has been at least half answered like Bahrain, Oman, Ghana have stepped in with comprehensive programs.

There is need to integrate sickle-cell disease control programmes in the national programmes for prevention and control of sickle cell disease in Uganda. Essential areas of work should cover awareness; prevention and counseling; early detection and treatment; data collection, surveillance and research; and community education and partnerships.

A multidisciplinary team involving health and social workers, teachers, parents and concerned nongovernmental organizations should be established to work on the practical aspects of implementation and monitoring of the programmes.

The government needs to establish programmes for management of sickle-cell disease at different levels of the health-care system emphasizing programmes that use simple, affordable technology and are accessible to a large proportion of the community.

Last year a group of Makerere University software engineering student came up with a solution to sickle cell screening problem. The four ladies designed a mobile application called Mdex to help diagnose sickle cell at a low cost and easily accessible even in rural areas. The government can support these home grown solution for sickle cell.

Fostering of appropriate partnerships between health professionals, parents, patients, relevant community interest groups and the media is crucial.

Partnerships will facilitate public education, identification of genetic risks in the community by recording family disease histories, genetic counseling, awareness and active participation in prevention and care programmes. Centres of excellence for pediatric care, adult care, and best practices must be developed.

As we commemorate World sickle cell day on 19th June lets have the government start comprehensive programs.

Ashiraf Ssebandeke 

Public Relations Officer

Sickle Cell Network Uganda



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