IBANDA: 6 Year Old With Strange Disease Seeks Help

A family in the western Ibanda district is stranded with their six year old daughter who was hit by a strange ailment that has got medics scratching their heads.

The girl, Maria Ainemukama Cynthia is daughter to Mark Tayebwa and Bonny Mbabazi, who live in Kaanama village in Kagongo division, Ibanda municipality.

Tayebwa says his daughter has lived with the nasty skin disease nearly her entire life, having contacted it at the age of three months.

At five months, he says, the baby started developing spots on her face and other body parts, which later grew into tumor like boils.

He says they rushed the baby to Mbarara Regional Referral Hospital, but doctors there couldn’t help and referred them to Mulago hospital for diagnosis.

At Mulago, Tayebwa says, one Dr. Joseph Mbuga told them that the girl’s skin could not endure direct sunlight and advised them to protect her from sunshine.

Medics suspect that the girl is suffering from a rare illness called Xeroderma pigmentosum, which causes the body to lose its ability to repair DNA damage such as that caused by ultraviolet light.

The family has since been advised to take the girl to India for further management.


Mr. Tayebwa says he has not ability to meet the medical costs in India and asked well-wishers to support him.

“I have been taking care of my child but I have reached a point of failure,” he told our reporter.


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